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Wednesday, 22 September 2021

No One Talks About the Days

No one talks about the days when you sit on a gravel pile beside your brother in law and try not to cry.* Tears Because. All the things. But Basically because you’re a selfish person and can’t muster up the patience today (and yesterday and the day before that, and beyond) demands. Also Because you’re tired of his passive aggressive attempts to hurt you every time he gets within kicking or shoving distance.  Also because you can’t listen to one more of his continuous inane questions without screaming. Also because there’s one slice of pizza in the fridge that’s calling your name really loudly, but you know that as a semi-loving semi-responsible adult you’ll have to share it with him. At least he kept the swearing for his mother. 


In the moment, I just see behaviours. The agression. The whining. The not listening. The calling his mom a string of expletives. The crying dramatically if he doesn’t get what he wants. The purposely doing things to annoy people. The endless endless endless talking. 


In the moment I don’t think about how his life has been. The first few weeks of school this year  have been hard for him -a favourite teacher quit after the first few days because a not so favourite teacher isn’t cooperating to make his school days happy and successful. Home Life is a little chaotic right now with people working crazy hours on harvesting and meals happening in random locations and fields. Further back, he has struggled for most of his life with illnesses, seizures, and physical handicaps. Further back yet, before he was belonged to this family, he was a tragically neglected baby who was never removed from his car seat for the first months of his life and had minimal human interaction before coming to live with our family.  


Life with a child with handicaps is difficult. He’s not my child, but he’s spent a lot of time at our house lately. (Remind me again -why did we move so close to The Parents?) He can be precious, adorable, loving, even helpful. These qualities have been scarce recently. When he was in bed tonight, the last battle of the day over, I was finally able to get some perspective -to think about the tragedies of his life and how they have impacted him, to remember that he does not have to tools to communicate his feelings, emotions, or even physical pains through words. “Every behaviour is a message,” says my mil after he’s finally asleep. His behaviours are so much easier to process when he’s sleeping. 


An admonition. Treat people with handicaps with respect. Treat their caregivers with respect. You may not be someone who knows what it’s like, and that’s okay. A former student who is growing up fast told me some wise words today about how to treat “our” child, and this applies universally. “Treat him like you treat everyone else,” she said, “kindly.”



*i realize this specific situation is not a universal problem. however, selfishness and reacting badly in difficult situations are. if anyone has suggestions for ways to be a better adult in these situations I would love to hear them. 

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